Tuesday, July 21, 2009

Conflicting Principles

Yo yo yo,

Alright, it's time for another posting purely fueled from my pissed-off attitude. As I have grown older (I won't say necessarily wiser), my reactions to incidents and beliefs to life have transformed. For the better or worse (It's all personal opinion), I have progressed into a more pacifistic individual, but there are times when I find myself wanting to lash out. This is one of those moments.

"Do unto others as you'd have them do unto you." Known as the Golden Rule this guideline to social interaction has permeated throughout many different beliefs. In essence this phrase is a terrific way to govern one's actions but what does one do when you are constantly wronged and used?

With my growing personal beliefs I have slowly started to realize that I don't put up with repetitive abusive behavior. When I feel that someone is abusing my kindness, I typically go bipolar on them. Sometimes, my response to this is, "I just want to punch them in the face." Not that I ever could bring myself to such a violent response, that phrase just best expresses how upset I am.

Now, to the subject of this rant. Without going into too much detail that exposes this person, I'll briefly summarize the situation with "hypotheses." Let's say someone has used resources and possessions without any form of consideration or respect. In summary, let's say that aside from emotional damages, the grand total comes close to around several thousand dollars over the past few months. Now, my conflicting question is: "Is there a point where 'Doing unto others...' loses its purpose?"

To combat this phrase I'll use another common saying, "Fool me once, shame on you. Fool me twice, shame on me." So, if one's behavior never changes should I thus adapt my interaction with them in order to protect myself or do I continue to present me and my assets vulnerable to such arrogant narcissism? Even with my Christian beliefs, I have difficulty allowing myself to constantly being used. Ultimately, can't one tie such neglect to vandalism? So many conflicting views, thankfully I don't have to deal with this issue. Those close to me do.

Everything up until this point has been just angered ramblings while looking for some justification for the way I feel. Unfortunately, writing things down haven't helped me deal and I don't feel like writing much more. Thus here's my verdict to the situation: I'm still going to say, "I'd punch them in the face." They're just lucky they don't have to deal with me.

Sunday, July 12, 2009

Creative Juices

In the past few weeks, I have been following several webcomics along with reading quite a bit. With all this reading my brain has started to think of how awesome it would be to tell a story. To create a plot line and allow the reader to take a ride with my characters. I'm not the most inventive or creative guy. Quite honestly, my first B in high school came from art class, but perhaps that was calling upon a different medium for my ideas to flow and my ideas are too linear to be put in picture. That's what I'll keep telling myself as I toy with my idea for a side project.

Now, as to what I want to do. Erik and I have had several discussions on a story that we could add to the Batman universe. He would handle the artwork and I would work with the text and story. We have actually written up a plot line but are now having to add the other details and even smaller details. I don't know if we'll ever get around to finishing it, but it was a good start for me I believe.

Another idea I had was to actually write a short story, but my grammar and writing prowess is nowhere close to being up to par with that idea. Also, I have ideas for stories but once again it's the details that hold me up. The character development, descriptions, and dialogue trip me up whenever I even try to start the actual writing process.

I have a slight fantasy that someday I could become famous. Mix this with the realization that I have next to no chance of ever becoming a house-hold name, I have toyed with the idea of writing a script for a show or movie. Drawing off stories heard or seen, I would love to portray an accurate view of college. Anytime I watch something based on college, it's so far twisted from the truth that I actually struggle to enjoy it. I'd love to bring something to the media that is a better portrayal of some of the best years of everyone's life, but I have no idea where to start with writing a script. Hmmm... Probably should google that.

Finally - and probably most realistically - I wouldn't mind starting a webcomic or comic in general. Without having to do too much character development, I could introduce people and let their actions or expressions explain their personality. There's never need for a large elaborate story. No need for smart dialogue. I don't technically need to have a plot. These awesome tidbits have gotten me seriously considering writing a comic, but alas, my lack of artistic talent haunts me once again. What's a comic without the pictures? Also, how can I make my comic more original than others? These are the two damning questions that I can't seem to figure out yet.

Just thought I'd update you briefly in my life. Nothing of great importance but I thought that if I'm lucky enough I could possibly get some juices flowing from writing everything out or better yet maybe some opinions from those few that read this blog. Hope the summer is treating everyone as awesome as it's treating me! Peace yo!

Wednesday, May 6, 2009

Consequences and Ethical Dilemmas in the Tuskegee Syphilis Study

Since I don't seem to post much on this website anymore, I decided that the one paper required out of me this semester should probably be posted. This is the paper that I chose to write for my Ethics in Engineering and Science course. Didn't think much about my choice, until I started to research more into the topic. There was some upsetting information to be found. It's sad to hear that just under 50% of the population knows about this incident. 

Not that you'll learn much from my paper, but at least it makes for a little more literature on the Tuskegee syphilis study to float around on the internet. Here's the paper:


The Tuskegee Syphilis Study has reached a level of infamy equivalent to such disasters as the experiments done by the Nazis during the Holocaust or the atomic bombings of Japan. With many innocent and ill-informed subjects hurt, there have been many distortions to fact and fiction. Ranging from the horrific truth that the subjects involved in the experiment were called cadavers to the equally terrifying lie that the men were injected intravenously with syphilis, sifting through the information to form knowledgeable conclusions has proven to be quite the task. The unfortunate truth is that this event happened thus it is necessary to evaluate the study’s processes and results to best learn from its compromise of human rights.

            In 1932 when the forty year study was started, the United States Public Health Service claimed syphilis was prevalent in more than 30% of African-Americans. This astonishing statistic was countered with the proposal to study untreated syphilis and the Tuskegee Institute agreed to partner with the research. Tuskegee, Alabama, was chosen as the location for the study. The subjects were found through a broad testing of the poor African-American communities in Tuskegee. The men who fit the criteria for the study were told they could receive free treatment for “bad blood,” a common nickname for syphilis.

Roughly six hundred African-American men participated in the study – 399 with a later stage of syphilis and 201 uninfected men were used for a control group. Allan Brandt explains:

 

Vonderlehr [the doctor performing the Wasserman tests] found that only the offer of treatment elicited the cooperation of the men. They were told they were ill and were promised free care. Offered therapy, they became willing subjects. The USPHS [United States Public Health Services] did not tell the men that they were participants in an experiment; on the contrary, the subjects believed they were being treated for ‘bad blood.’ (Reverby 21-22)

 

This deception was only the beginning of a morally questionable scientific study. As stated in the introduction to her book Tuskegee’s Truths: Rethinking the Tuskegee Syphilis Study Reverby states, “The Tuskegee Study could be seen as just one of many violations of basic moral codes when science goes ‘bad’.” (Reverby 2)

            The studies performed on the men consisted of multiple examinations and a spinal tap to test for neurosyphilis. In order to deceive the subjects into thinking that they were receiving treatment, non-effective drugs were handed out to the men instead of giving them the proper care for their syphilis. This study of the untreated syphilis continued for 40 years until Peter Buxtun, a Public Health Service’s venereal disease interviewer and investigator, leaked the study to the Associated Press. The story’s publication led to a public outcry which finally put the study to rest and gave the still-living infected proper treatment.

            It is important to note that the Tuskegee syphilis study was ended through an act of whistle-blowing. It was not until Peter Buxtun went outside of the Public Health Services that the study was suspended. Whistle-blowing is a delicate procedure. To go outside of the proper protocol to expose your associates’ errors requires careful steps.  Buxtun twice expressed his concerns about the Tuskegee syphilis study to the Centers for Disease Control in hopes that the study could be ended through those in the medical field. After a couple years of being ignored, he finally decided the only way to properly right this horrible study was to disclose information to the Associated Press, who later published the story. While many whistleblowers suffer consequences for their actions, Buxtun actually was well received by the public and praised for his moral ethics.

            After much scrutiny and review, the Tuskegee Syphilis Study has produced many compromises on the ethics practiced during the research. While these technicalities have been altered in the Medical Code of Ethics to eradicate the same abuse in future research, it is still important to study and learn from this previous failure to recognize the value of human rights.

            The study provides several ethical disregards. Most notable is the deception of the participating men. They were told treatments were to be given to help cure their syphilis when there was never any intention by the governing doctors to treat the disease. In a letter from Dr. O.C. Wegner, chief of a venereal disease clinic, to Dr. Vonderlehr, Wegner states, “we have no further interest in these patients until they die” (Reverby 23). One of the few ways this irreverent approach to human life could possibly be argued ethically is through utilitarianism. The thought of being able to benefit the rest of the African-American community and scientific world could ethically justify such a deceptive act; but can one truly justify such an act morally?

            Until 1947, there was no successful treatment found to work on the syphilis-infected African-Americans. This is largely why the study was started, but in 1947 a new drug called penicillin was being used for syphilis treatment. Amazingly, penicillin was declined to all those partaking in the study. Syphilis had been observed for over fifteen years by this point and “25% of the syphilitic group and 14% of the controls of comparable ages had died” (Reverby 402). The need for a continuation of the study was unnecessary. Even an ethical approach of utilitarianism could not dismiss this act. In an effort to explain the attitude taken towards the ethical issues of the study:

 

A 1976 interview conducted by [Dr. James] Jones with Dr. John Heller, Director of Venereal Diseases at the PHS [Public Health Services] from 1943 to 1948, who stated, “The men’s status did not warrant ethical debate. They were subjects, not patients; clinical material, not sick people.” (Reverby 411)

 

This disregard for the human rights of the male subjects is astonishing. This statement alone shows the role racism played in the ethical approach to the study. In retrospect, Robert Cassell, a former medical director for the public health department in Bridgeport, Connecticut, states, “The goal of human experimentation must always be to advance the human condition, and to improve the lot of the subjects of the study. These are the sine qua non [(a condition) without which it could not be] of valid medical research.” (Reverby 5).

The scientific method taken in the study at Tuskegee should also be questioned. From the conception of the study, a proper methodology seemed to be ignored. The study was started with no hypothesis to be proven. Nothing was to be changed throughout the process. It was to strictly be an observation of syphilis in the African-Americans. Yearly examinations were to track the disease’s symptoms with a spinal tap to check for neurosyphilis. It wasn’t until necropsy that any valid information was gained and even still, the information just confirmed the previous known fact that syphilis can cause expedited mortality. A hypothesis must be set in order to have a proper scientific method.

            When looking back at such heinous treatment of human lives, one cannot help but think of how things could have been approached differently. Obviously, the participants of the study should have known their symptoms and the purpose of the study before willingly partaking in it. By lying about the study, the doctors deceived the Tuskegee community and the men involved in the study. Also, there should have been proper treatment for symptoms instead of using placeboes especially when penicillin was found as a means for combating the syphilis disease.

            While justification for such an event cannot be warranted, one can look optimistically at how a nation has learned. The event has sparked an informative response that has given “a metaphor for what happens when there is no informed consent, when medical paternalism and arrogance substitute for a consciousness about research ‘materials’ as human beings” (Reverby 4). Also, the study caused a chain reaction that influenced several changes in scientific protocol. “Institutional review boards (IRBS) … must examine most protocols that involve human subjects before research studies begin now exist, in part, because of the revulsion against what happened in Tuskegee” (Reverby 2).

            While studying the Tuskegee syphilis study, one realizes that if an ethical approach had been taken towards the study then all of the issues would have been avoided. If ethics had been applied to the scientific method, knowledgeable consent would have been received from all participants, maximal treatment for all individuals in the study would have been supplied, there would have been a proper handling of information procured, and most importantly the Public Health Services would have avoided compromising their reputation. It has taken until 1997 for the government to issue a formal apology, nearly 25 years after the closure of the incident. How much longer must a nation wait until trust can be restored to those in power?

           


ANNOTATED BIBLIOGRAPHY

Reverby, Susan, ed. Tuskegee’s Truths: Rethinking the Tuskegee Syphilis Study. Chapel Hill: The University of North Carolina Press, 2000.

            Tuskegee’s Truths was a collection of works that was composed by Susan Reverby. With the multiple articles and papers within the book, this was the most commonly quoted and referenced book.

White, Dr. Robert. "Challenges in a Narrative About the Tuskegee Study of Untreated Syphilis." 2008. Wesleyan University. 4 May 2009 .

 

            This article was used in order to provide more information on the impact of the Tuskegee study. It was purely an informative resource.

 

Katz, Dr Ralph, et al . "The Legacy of the Tuskegee Syphilis Study: Assessing its Impact on Willingness to Participate in Biomedical Studies." Journal of Healthcare for the Poor and Underserved. 2008. 4 May 2009  .

 

            This article was used in order to provide more information on the impact of the Tuskegee study. It was purely an informative resource.

 

MedicineNet.com. 7 August 2004. MedicineNet. 4 May 2009 .

 

            This website was used in order to learn a better understanding of the syphilis disease and the different stages it manifests.

           

Bellows, Alan. “Bad Blood in Tuskegee.”  30 April 2007. DamnInteresting. 4 May 2009 < p="843">.

 

            This article was used in order to provide more information on the impact of the Tuskegee study. It was purely an informative resource.